The Multiple Sclerosis Data Alliance (MSDA) is a multi-stakeholder collaboration, in line with and inspired by the Patient Registries Initiative of the European Medicines Agency, working to accelerate research insights for innovative care and treatment for people with MS, by:
> raising awareness about the importance of research using real world MS data
> enabling better discovery and access to meaningful real-world MS data (including comparable MRI data) from multiple MS registries and other sources
> promoting trustworthy and transparent practices in the way real world MS data is used in healthcare.
For the first time MSDA organised a Stakeholder Engagement Meeting, Seauton was responsible for the organisation and coordination of it all. On the program: Several lectures and panel debates.
Seauton is the Operational and Administrative Secretariat of the MS Data Alliance and focuses on industry relations management, sponsorship collection, the organisation and coordination of meetings and events, strategic planning and follow up of execution of the business plan and general office management.
The target group?
MS Data stakeholders from all over the world:
> Regulatory decision-makers
> People with MS/patient societies
> Data custodians
How many participants?
Seauton took care of the following:
> Communication & branding
>Registration & hotel management